Download the full report: Results of the ITEA international customer & end-user workshop on Smart Health
On 21-22 June ITEA organised its 2nd international customer workshop. This year’s topic was Smart Health. The aim was to receive from the different stakeholders in the value chains their concerns about desired functionalities or any difficulties they encounter in delivering efficiently in their daily environment. These results are an opportunity for the ITEA community to create ITEA R&D projects dedicated to solving actual end-user concerns or challenges. We have observed that projects involving user demands from the outset are usually more successful in demonstrating an impact on the market, which remains the first priority for ITEA. This report shares the output of this workshop with the ITEA community at large.
The participants represented a wide range of stakeholders in the smart health value chain:
We focused the discussions on two topics:
It became immediately evident that this division was a bit superficial for many reasons:
Nevertheless, we used these two topics to organise our discussions.
The key challenges gathered during these two brainstorming sessions are presented in the next two paragraphs.
Some strong messages appear during our workshop:
The hospital organisations are based on iconic hospitals gathering all the most advanced technologies to serve the patients and enabling local hospitals to be closer to the patient. This generates a phenomenon of overtriage. It requires a clear workflow and associated data exchange to determine which hospital is best suited to treating the patient. The present reality is that a lot of patients are pushed toward the iconic hospitals by default, which generates an overload in these hospitals, while it would have been better for the patient to be referred to a local hospital. The extra cost per patient is estimated at €6K. While the urgency management is exemplary, the monitoring of some chronic diseases causes similar problems, especially in terms of transport, which results in a huge cost for society.
The hospitals are calling for the definition of patient workflow from the first contact with the hospital to when he is at home and maintaining some relationship with the doctors. It means that they want to cross the artificial border between the workflow in the hospital and the workflow at home. It covers macro workflow (long-term treatment) and micro workflow (medical treatment). It includes geolocalisation of the patient, the devices, the doctors and nurses when they are in the hospital.
The pressure of chronic diseases is extending the role of the hospital from acute care to providing community care. The patient has to do more: he has to be able to provide input to enable the health system to learn but without this being a burdensome task; active coaching to improve acceptance. The challenge is to ensure upscaling to millions of patients. The cost of the monitoring process must reduce the pressure on the health professional and overall costs while taking into account the patient’s social and psychological circumstances.
Hospitals are under such pressure in terms of activity, number of patients and level of cost that they need to move from an urgency management process to a care ‘production process’. Taking into account that the hospital manages a few key moments which are the human face-to-face contacts between the patient and the nurse / doctor, such moments (20% of the time) need to be protected. The optimisation of the rest of the process (80%) is an opportunity to protect these moments as it is always these times which are cut under pressure. Lean processes need to be checked.
Remote patient monitoring is becoming key to the earlier release of the patients with patient monitoring at home. We can imagine some health data measurement kiosk in the city to facilitate usage. We are speaking about social networks for healthcare to connect the healthcare stakeholders.
These workflows act cooperatively. For the special case of chronic diseases like cancer. They have multidisciplinary conferences where the different actors are sharing their understanding of the patient’s situation and co-decide the next protocol to propose to the patient. These conferences require:
Besides the workflow itself, there is a key demand for data access between the silos (services, hospitals, liberals …) to allow easy access to all relevant data “owned” by other organisations. This data access will also have to deal with the privacy rules (cf privacy paragraph below)
The quantity of data is exploding because of:
This data explosion is such that the doctors are no longer able to mentally organise all the available data. It requires big data analysis to allow simple browsing of registered data.
In the special case of intensive care too many sensors and data generate alarm fatigue.
A side effect is the requirement of anonymous databanks to design and test all these algorithms.
Demand for training and education (virtual rooms, MOOCs, ..) is greater.
The first step is to ask the user!
Isolation is the great danger.
A key demand is usability – the simplicity of usage, gamification, no training to start usage, no stigmatisation.
Users must cover the different stakeholders (patient, family, nurses, doctors, ...).
Reimbursement in Europe tends to be based on treatment or prevention rather than the results.
Actual impact must be demonstrated in terms of cost reduction and care enhancement.
The patient‘s home is the setting of chronic conditions – not the hospital! The focus needs to be on primary care.
Health care services in the primary care sector need to be bundled to:
A challenge is to find solution to engage people.
At home health devices are in coopetition with native iOS/Android features (calendars, health kit,..), posing the challenge of the quality of the acquired data.
Seniors are less concerned with their health status (until they become ill):
Smart homes with non-intrusive sensors are still:
and big data value creation requests time.
Families feel guilty but need to be given an incentive to participate; they need a nudge.
Social recommendation is becoming the preferred solution (algorithm-bashing).
The system is unsustainable if spending continues as now: we have to reduce the need for personnel, reduce the pressure on the professional. A net increase in the workforce is not feasible. We must multiply by ten the patient/professional ratio when patients are at home.
Self-care and informal care-giver are the new key! Challenge on user side: where technology replaces the human, that technology needs to be trustworthy.
The data need to be automatically interpreted and transformed to a higher semantic level. It must be actionable by the patient. It must be interoperable at the higher semantic level.
Privacy and Security are key issues for all projects The identification of privacy and responsibility are sensitive issues. In some countries like Germany, this is particularly the case.
Can we implement single patient consent for each access (and how can we do it)?
Cloud services are not working if you split them per country: how to comply with the laws? (counter example: USA, Patriot Act)
The more ill you are, the less you care about privacy. Privacy is negotiable for better personalised services.
Evaluation of the system from an independent institution: secondary use of data for scientific questions; how to generate statistical data in a trusted way.
It does not have to be geographical (set of people who want to “play with me”)
Show on a regional level that it works (city is different from rural area)
Low-margin high-volume is different from high-margin low-volume (up to now typical for med-tech).
Open cloud infrastructure / open source. Not for free, but creating an eco-systems (docking for SME).
Geriatrics is holistic and not specialised: Quality of life issue.
Commitment of all to work around the same patient: who owns the therapy? And after the commitment we need help.
Personalised care / medicine will move into personalised health and lifestyle.
Cities are important health actors and will have to solve multiple challenges:
Health is cure not only when I am ill.
Connection with the community, social life, volunteering, prevention: can we offer a platform? Can we evaluate the how well they are doing? Can we give the participants something back?
Canada: Pay for value and quality instead of processes
Many ideas for ITEA R&D projects arose during the discussions. In this paragraph we list these ideas with a short explanation of the content and some key players interested in promoting the idea. These ideas will be inputs for the ITEA Project Outline Preparation Days, taking pace on 13-14 September in Paris. Of course, these inputs will be discussed in detail, possibly combined, refined or – conceivable as well – not pursued further during this two-day brokerage event. Feel free to contact the referenced players if you are interested in discussing the topic.